The Long COVID Survival Guide: Stories and Advice from Twenty Long-Haulers and Experts (Paperback)
The first patient-to-patient guide for people living with Long COVID—with expert advice and an afterword by the leading research scientist
For people living with Long COVID, navigating the uncharted territory of this new chronic illness can be challenging. With over two hundred unique symptoms, and with doctors continuing to work toward a cure, people experiencing Long COVID are often left with more questions than answers.
A support group in book form, The Long COVID Survival Guide is here to help. Twenty contributors—from award-winning journalists, neuroscientists, and patient-researchers to corporate strategists, activists, and artists—share their stories and insight on topics including:
- getting diagnosed
- finding a caregiver
- confronting medical racism and gaslighting
- navigating employment issues
- dealing with fatigue and brain fog
- caring for your mental health, and more.
Contributors: Karyn Bishof, JD Davids, Pato Hebert, Heather Hogan, Monique Jackson, Naina Khanna, Lisa McCorkell, Karla Monterroso, Dona Kim Murphey, Padma Priya, David Putrino, Yochai Re’em, Rachel Robles, Alison Sbrana, Chimére L. Smith, Letícia Soares, Morgan Stephens, and Terri L. Wilder
About the Author
Fiona Lowenstein is an award-winning journalist, producer, speaker, and the founder of Body Politic, a grassroots patient-led health justice organization. Lowenstein was hospitalized for COVID-19 in March 2020 and went on to found the Body Politic COVID-19 Support Group, which offers support and resources to over eleven thousand people living with COVID-19 around the world. They live in Los Angeles.
Akiko Iwasaki received her Ph.D. from the University of Toronto (Canada) in 1998, and her postdoctoral training from the National Institutes of Health (USA) (1998-2000). She joined Yale University (USA) as a faculty in 2000, and currently is an Investigator of the HHMI and Waldemar Von Zedtwitz Professor of Department of Immunobiology, and of Department of Molecular Cellular and Developmental Biology. Akiko Iwasaki’s research focuses on the mechanisms of immune defense against viruses at the mucosal surfaces. Her laboratory is interested in how innate recognition of viral infections lead to the generation of adaptive immunity, and how adaptive immunity mediates protection against subsequent viral challenge.
“This is the Long COVID book that the world needs—a practical, authoritative, compassionate, and ultimately hopeful guide to a difficult condition, written by the people who understand it best. So many long-haulers have faced their illness alone and unheard; none ever need to do so again.”—Ed Yong, New York Times–bestselling author of An Immense World and Pulitzer Prize–winning journalist
“The Long COVID Survival Guide is not only a moving and helpful compilation of stories but a necessary one, given how many lives Long COVID will touch as coronavirus infections accumulate. It brings practical and emotional support to those who are struggling to navigate a scary new reality. The Long COVID Survival Guide is not just for patients but their loved ones, friends, colleagues—in short, all of us. I wish I’d had this book when I first got sick with a similar condition a decade ago!”—Meghan O’Rourke, New York Times–bestselling author of The Invisible Kingdom
“This book is a much-needed antidote to the isolation of Long COVID. Drawing on their personal experiences, the authors offer important advice on getting properly diagnosed, dealing with medical racism, finding community support, and more—all while reminding you that you are not alone on the journey to recovery.”—Oni Blackstock, MD, MHS, founder and executive director of Health Justice
“A gem of a book that provides accessible, vital, and insightful information delivered in a way that is welcoming, kind, and encouraging—and from people who know best about this perplexing condition. Beautifully done, you can feel the caring in each page . . . and readily appreciate the wisdom. An amazing accomplishment to have produced such a gift to all those who are suffering—and all those who care about them.”—Harlan Krumholz, MD, SM, professor of medicine, Yale University, and director of the Yale Center for Outcomes Research and Evaluation